Tag: Disability Advocacy
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Motivation vs Disability: It’s Not That Simple
Your worth is not measured by your productivity. Your strength is not defined by how hard you push through pain. Progress is personal and so is power. We often hear phrases like “If you really wanted it, you’d find a way” or “You just need to stay motivated.” These messages flood our social media feeds,…
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Understanding Prader-Willi Syndrome
It’s very important to understand PWS because nobody, no one else understands. Prader-Willi Syndrome (PWS) is a rare genetic disorder that affects many aspects of a person’s life, including growth, metabolism, cognitive abilities and behavior. This complex syndrome is caused by the loss of function of specific genes on chromosome 15, which can result in…
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Invisible Disabilities
Although the world is full of suffering, it is full also of overcoming of it. – Helen Keller Invisible disabilities, often overlooked or misunderstood, refer to conditions that aren’t immediately apparent to others but still significantly impact a person’s daily life. These can include chronic illnesses, mental health conditions, learning disabilities, or sensory processing issues.…
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Living with Cerebral Palsy
As humans we are in a constant state of evolution; making choices and building upon the knowledge and ideas we have at any given time. -Michele, CP Daily Living Living with cerebral palsy (CP) involves navigating a range of physical and sometimes cognitive challenges. CP is a group of disorders that affect a person’s ability to…
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Feel like you are on display
“The only thing worse than being blind is having sight but no vision.” Helen Keller For many people with disabilities, being stared at is an all-too-familiar experience. Whether it’s out of curiosity, confusion or even sympathy, these looks can be uncomfortable and sometimes even painful. I have had to endure the stares’ of people with…