Tag: Disability Awareness
-
Discipline Works Differently
Discipline isn’t about perfection. It’s about persistence even if the pace changes. We’re taught that discipline means structure, routine and consistency. Wake up at 5 AM. Stick to your plan. No excuses. Hustle harder. Push through. But for people living with disabilities, whether physical, mental, neurological, or invisible, discipline doesn’t always look like that. And…
-
Motivation vs Disability: It’s Not That Simple
Your worth is not measured by your productivity. Your strength is not defined by how hard you push through pain. Progress is personal and so is power. We often hear phrases like “If you really wanted it, you’d find a way” or “You just need to stay motivated.” These messages flood our social media feeds,…
-
Exploring Rett Syndrome
Her eyes have their own vocabulary. What a beautiful language to learn. Rett syndrome, Cerebroatrophic hyperammonemia, is a rare neurological disorder that primarily affects women, leading to severe cognitive and physical impairments. It is a genetic disorder that occurs due to a mutation in the MECP2 gene, which plays a key role in brain development…
-
Understanding Prader-Willi Syndrome
It’s very important to understand PWS because nobody, no one else understands. Prader-Willi Syndrome (PWS) is a rare genetic disorder that affects many aspects of a person’s life, including growth, metabolism, cognitive abilities and behavior. This complex syndrome is caused by the loss of function of specific genes on chromosome 15, which can result in…
-
Unfolding the Journey of Albinism
Albinism is a beautiful difference that deserves to be celebrated. – Edith Jibunoh Albinism is a rare, non-contagious, genetic condition that affects people of all ethnic backgrounds worldwide. It results in little or no production of melanin, the pigment responsible for colouring the skin, hair and eyes. Albinism also impacts vision, often causing lifelong visual…
-
Usher Syndrome
Barriers are real. That said we can overcome and transcend them. – Bill Barkeley Usher syndrome is a rare genetic condition that affects both hearing and vision, creating a unique set of challenges for those living with it. It is the most common condition involving both hearing loss and an eye disorder called retinitis pigmentosa…
-
Intellectual Disabilities
You don’t have to control your thoughts. You just have to stop letting them control you. – Dan Millman Intellectual disabilities (ID) affect millions of people worldwide. They often remain misunderstood or overshadowed by other types of disabilities. We’ll explore what intellectual disabilities are, the challenges faced by those living with them and how we…
-
Exploring Dyspraxia
If anyone ever puts you down for having dyslexia, don’t believe them. Being dyslexic can actually be a big advantage and it has certainly helped me. – Richard Branson Dyspraxia, or Developmental Coordination Disorder (DCD), is a neurological condition that affects motor skill development and coordination. Unlike other conditions with visible markers, dyspraxia is often…
-
Hidden Challenges
The advice I’d give to somebody that’s silently struggling is, you don’t have to live that way. You don’t have to struggle in silence. You can be un-silent. — Demi Lovato Fragile X syndrome (FXS) is a genetic condition that causes a range of developmental issues, including learning disabilities and cognitive impairment. It’s the most common…
-
Down Syndrome – Celebrating Abilities
I can’t change the direction of the wind, but I can adjust my sails to always reach my destination. – Jimmy Dean Down Syndrome, also known as trisomy 21, is a genetic condition that occurs when a person has an extra copy of chromosome 21. This additional genetic factors in development and causes the characteristic…