Tag: Living with a Disability
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Having Friends With a Disability
“Friendship means seeing the person, not the struggle.” Friendship is one of the most powerful connections we experience in life. It’s built on trust, laughter, shared moments and showing up for one another. But when disability enters the picture, friendship can sometimes feel unfamiliar to people who haven’t experienced it before. The truth is, having…
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What Can You Do Today That You Couldn’t Do a Year Ago?
You are stronger than you were a year ago. For many living with a disability, progress doesn’t always look the way society expects. It may not be about running faster, lifting heavier, or reaching milestones others take for granted. Progress often comes in quieter, deeply personal victories ones that may seem small to the outside…
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You’re Still Standing
At some point or another, life punches everyone in the face. – Jon Morrow Let’s be honest. Life doesn’t wait for a convenient time to fall apart. One day you’re managing. The next, everything feels too heavy to carry. Whether it’s a sudden diagnosis, a health flare-up, a personal loss, or just the never-ending pressure…
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Disability and Decision Fatigue: When Every Choice Feels Heavy
If you’re feeling overwhelmed, it doesn’t mean you’re broken. It means you’ve been strong for too long without a break. We make countless decisions every day from what to wear and eat, to how we respond to messages or manage time. For most people, these small choices go unnoticed. But for many people living with…
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Discipline Works Differently
Discipline isn’t about perfection. It’s about persistence even if the pace changes. We’re taught that discipline means structure, routine and consistency. Wake up at 5 AM. Stick to your plan. No excuses. Hustle harder. Push through. But for people living with disabilities, whether physical, mental, neurological, or invisible, discipline doesn’t always look like that. And…
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Understanding Tourette Syndrome
You must be the change you wish to see in the world. – Mahatma Gandhi Tourette Syndrome (TS) is a neurological disorder characterized by repetitive, involuntary movements and vocalizations known as tics. While often misunderstood, Tourette Syndrome is much more than just a series of tics. It’s a condition that can affect individuals in various ways…
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Understanding Prader-Willi Syndrome
It’s very important to understand PWS because nobody, no one else understands. Prader-Willi Syndrome (PWS) is a rare genetic disorder that affects many aspects of a person’s life, including growth, metabolism, cognitive abilities and behavior. This complex syndrome is caused by the loss of function of specific genes on chromosome 15, which can result in…
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Unfolding the Journey of Albinism
Albinism is a beautiful difference that deserves to be celebrated. – Edith Jibunoh Albinism is a rare, non-contagious, genetic condition that affects people of all ethnic backgrounds worldwide. It results in little or no production of melanin, the pigment responsible for colouring the skin, hair and eyes. Albinism also impacts vision, often causing lifelong visual…
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A Journey Through Unique Conditions
You are not a burden; you have a burden that is too heavy to carry on your own. Rare diseases are health conditions that affect a small portion of the population, often with fewer than one in 2,000 individuals experiencing each disease. Despite their rarity, there are over 7,000 identified rare diseases and together, they…
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Intellectual Disabilities
You don’t have to control your thoughts. You just have to stop letting them control you. – Dan Millman Intellectual disabilities (ID) affect millions of people worldwide. They often remain misunderstood or overshadowed by other types of disabilities. We’ll explore what intellectual disabilities are, the challenges faced by those living with them and how we…